PANS PANDAS UK

About

This is an independent service, which is not run by the NHS or WSCC.

This service is not checked by WSCC and including it on the Local Offer website does not mean that it is a recommended service.

Before using this service, we recommend you make your own checks. Your checks should include being happy that: the service will meet your needs; staff are properly qualified; policies are in place to keep everyone safe and you know how much the service will cost.

Use this guidance for advice about what to ask to help you make sure that children and young people are happy and protected in clubs, groups and activities. Find out more on our terms and disclaimer.

---

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.

One estimate suggests that up to 1 in 200 children suffer from this condition.

What we do

  • Resources for parents including diagnostic criteria and details of local support groups, Resources for Medical professionals Resources for teachers and Schools Teacher training package
  • Facebook group for parents/caregivers, Facebook group for Young People age 12-17 with the condition Facebook group for Adults
  • Links to further Research, Advocacy and support from the charity
  • Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.
  • All of West Sussex covered. We provide support via our Facebook group PANS PANDAS UK.

Age range

4-19

Wheelchair accessible

Yes

Free to use

Yes

Our users say

When PANS PANDAS came on to our radar, I contacted the charity and was very quickly given the information that I needed and signposted to where we could get help. With the correct treatment provided, we can see improvements in our child's symptoms.

Share this